psychometric properties of the persian version of cerebral palsy quality of life questionnaire for children

how to cite this article : soleimani f, vameghi r, kazemnejad a, akbar fahimi n, nobakht z, rassafiani m. psychometric properties of the persian version of cerebral palsy quality of life questionnaire for children. iran j child neurol. 2015 winter;9(1):76-86.   abstract objective cerebral palsy (cp) is the most common cause of chronic disability that restricts participation in daily life for children. thereby, it is comprised of quality of life. quality of life (qol) measures have been a vital part of health outcome appraisals for individuals with cp and to obtain empirical evidence for the effectiveness of a range of interventions. the cp qol-child is a condition-specific qol questionnaire designed for children with cp to assess well-being rather than ill-being. materials & methods forward and backward translations of the cp qol-child were performed for: (1) the primary caregiver form (for parents of children with cp aged 4–12 years); and (2) the child self-report form (for children with cerebral palsy aged 9–12 years). psychometric properties assessment included reliability, internal consistency, and item discrimination, construct validity with gross motor function classification system (gmfcs) and manual ability classification system (macs) was done. spss was used to analyze the results of this study. results a sample of 200 primary caregivers forchildren with cp (mean = 7.7 years) and 40 children (mean = 10.2 years) completed. internal consistency ranged from 0.61–0.87 for the primary caregivers form, and 0.64–0.86 for the child self-report form. reliability ranged from 0.47–0.84. item discrimination analysis revealed that a majority of the items (80%) have high discriminating power. confirmatory factor analysis demonstrated a distinguishable domain structure as in the original english version. moderate associations were found between lower qol and more severe motor disability(gmfcs; r = .18–.32; p < .05 and macs; r= .13 - .40; p < .05). the highest correlation between the primary caregiver and child forms on qol was in the domain of functioning and consistent with the english version. conclusion content validity, item discriminant validity, internal consistency, and test-retest reliability of the persian version of the cp qol- child were all acceptable. further study of concurrent validity of this version is needed.     references bax m, goldstein m, rosenbaum pl, leviton a, paneth n, dan b et al. executive committee for the definition of cerebral palsy. proposed definition and classification of cerebral palsy, april 2005. dev med child neurol 2005; 47:571–576. rosenbaum, p, paneth, n, leviton a, goldstein m, bax m, damianod, et al. a report: the definition and classification of cerebral palsy april 2006. dev med child neurol 2007, 49, 8–14. surveillance of cerebral palsy in europe. surveillance of cerebral palsy in europe: a collaboration of cerebral palsy surveys and registers. dev med child neurol 2000; 42, 816–824. liptak gs, o’donnell m, conaway m, chumlea wc, wolrey g, henderson rc, et al. health status of children with moderate to severe cerebral palsy. dev med child neurol 2001; 43, 364–370. maher ca, olds t, williams mt, lane ae.self-reported quality of life in adolescents with cerebral palsy.physical & occupational therapy in pediatrics 2008; 28, 41–57. pirpiris m, gates pe, mccarthy jj, d’astous j, tylkowksi c, sanders jo, et al. function and well-being in ambulatory children with cerebral palsy. journal of pediatric orthopedics 2006; 26, 119–124. vargus-adams j. health-related quality of life in childhood cerebral palsy. archives of physical medicine and rehabilitation 2005; 86, 940–945. varni jw, burwinkle tm, sherman sa, hanna k, berrin sj, malcarne vl, et al. health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. dev med child neurol 2005; 47, 592–597. bjornson kf, mclaughlin jf.the measurement of health-related quality of life (hrql) in children with cerebral palsy.european journal of neurology 2001; 8(suppl. 5), 183–193. waters e, maher e, salmon l, reddihough d, boyd r. development of a condition-specific measure of quality of life for children with cerebral palsy: empirical thematic data reported by parents and children. child: care, health, and deve 2005; 31, 127–135. waters e, davis e, mackinnon a, boyd r, graham hk, kai lo s, et al. psychometric properties of the quality of life questionnaire for children with cp. dev med child neurol 2007; 49, 49–55. wang hy, cheng cc, hung jw, ju yh, lin jh, lo sk. validating the cerebral palsy quality of life for children (cp qol-child) questionnaire for use in chinese. populations. neuropsychological rehabilitation 2010; 20, 883–898. mutch l, alberman e, hagberg b, kodama k, peratmv. cerebral palsy epidemiology: where are we now and where are we going? dev med child neurol 1992; 34: 547–51. stanley f, blair e, alberman e. 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